The North Carolina Congenital Heart Disease Network is a project funded by the Centers for Disease and Control both to understand the impact of congenital heart disease on North Carolina as well as provide education and resources for patients and families affected by congenital heart disease. The Network is funded to undertake a statewide comprehensive surveillance project as well as act as a resource to parents with congenital heart disease. While there are many partners coming together to complete this project, the Duke Clinical Research Institute is acting as the coordinating center.